Hang in there, it gets better. If you think about it, everyone has
something that bothers them. I was diagnosed with chronic tinnitus in my
left ear in Sep 2010, and after finally habituating to it after a year I am
now going through what my ENT believes is chronic Eustachian tube
dysfunction on top of that. It is frustrating, but most people with
Menieres get better.
Thank you again for making these videos. I have not found any support
groups on FB. Just youtube and random websites. I hope you feel better
soon. Just keep fighting.
Ed, thanks again for your information and support. I am sorry to hear that
you are indeed having a bilateral problem. I agree with you about the
fustration of having to deal with this every single day and all the time. I
just try to find things that make me happy and smile, love to listen to
music and be as creative as I can be in my hobbies. Still production is
down and often have to pace myself in everyway. Got approved for SS
disability this week so at least now I am retired. Godbless
@MrMoonpie001 Good luck to you. and Glad you go the SS disability.
Unfortunately, Most physicians really do NOT understand this disease and
the extremes in symptoms. The key is to find one that does. Will hopefully
be trying to create a video about finding the right health care provider,
but it is a tricky one to make.
@heidicat45 Why is my video considered spam? I am just trying to help
others. I am not selling anything or trying to push a radical opinion on
anyone. I resent this flag of my video as spam.
@123456fasted I would be willing to discuss some of this with you is you
need some help brain storming. I like to use Skype if your interested or
maybe we could talk via chat room if you know of one or create one. You are
getting a pretty steady following and it might help others become more
informed. Just a suggestion.
Thank you so much for posting these very informative videos!!! God Bless
Hi .. I just got the diagnostics I have meniere .. and tinnitus permanent
.. any help for the ringing please thanks ed’S
Sorry no good solution for the Tinnitus, but there things that do help: 1)
Lots of sleep with low stress 2) Benzodiazapines (Ativan, Klonopin, or
Valium) at night 3) Hearing Aids definitely help decrease the amount. ALL
hearing aid sellers MUST give you a full 60 day 100% refund with no
questions if they do not help. 4) B complex vitamins and regular Calcium
Supplements cannot hurt. 5) Vit C higher dose or Citrus / Lemon Extract has
been supposedly helpful.
Hope your health remains well and the attacks stay few and far between.
Thanks Ed for this and all your videos.Ive been going through these stages
myself and some days are good and others as you know not so much.Ive been
suspected of having meneieres but more testing is coming,but i have had
constant dizziness,tinitus,and pressure for 9 weeks now.Im on the diuretics
and low salt regimin,and been out of work for 2 weeks.I really sensed your
frustration at the end and you have my compassion .Have you considered the
surgrys at all? Or the geramicin injections?
You can get better but you must treat the cause, or try to. You can’t just
let a doctor say labrynthitis or meneire’s. They are both symptoms of an
Hi ed, I am now in stage two quite progressed bilateral..have no hearing
yet would like to watch your videos..any subtitles?
THERE IS A CURE GOOGLE MMS(MIRACLE MINERAL SOLUTION) AND JIM HUMBLE 1
minute cure.com / universalvideo _ nooptin. html
I have been suffering with this disease since my first year of college in
2006 and was finally diagnosed in 2011. I have been having a really bad
attack all week starting Monday night and actually bring me to tears. I
came across a few blogs were people say they’ve had some luck with
acupuncture. I went today for my first session and I have to say I think it
helped. It’s a lot better than it has been all week, but that could just be
If you haven’t tried it it might be worth a go… I’m also going to an
osteopath on Friday as I’ve heard that some people have results With that
too… I wish you the best of luck with managing your condition.
Your video was really great. I have not actually been diagnosed with
Meniere’s, but do have some inner ear issues that have been going on off
and on through the years and got worse when I developed CFS/fibromyalgia
and chronic EBV. Things got really bad with pretty much daily
dysequilibrium and dizziness after I had reactivation of EBV in 2011 and
then got vaccines and had a severe reaction, which then caused some
dysautonomia symptoms and I have definitely been going through those
Great video for dealing with chronic illness . Keep your good work. I have
vestibular disorder with 24/7 dizziness
I was diagnosed with MD about 20 years ago in my 30’s. I had a sac
decompression done immediately after my first severe attack and it was
successful for 15 years with no symptoms. My symptoms returned about 5
years ago and it is now bilateral. I have had three severe attacks
requiring hospitalization and having to be taken to the hospital by
ambulance. I take a strong diuretic every day and Valium. I am to the point
now that I have severe fullness and dizziness every day.
I have Meniere’s Disease almost 6 years now. It took four months of
testing, and every test coming out normal. I did go through a depression, I
knew I wasn’t imagining these syptoms. When I was finally diagnosed with
Meniere’s, I felt relief. I have all the symptoms every single day, deaf,
tinnitus, vertigo and confusion. The violent attacks are few and far
between, but the every day vertigo and being deaf, I’m used to now. I do
miss my independence, driving and working, though.
Yes I have had it for many years and still miss my independence and perfect
hearing. Now I am deaf in one ear and need two hearing aids. Tinnitus there
still but I have found ways to manage it using external sounds
I have had this since childhood, and I am on serc and spiractin, due to a
complicating potassium issue.
Most days, I tend to think that nobody understands. You, however, seem to
know how much it can interfere with your life-unfortunately, I am
My speech is seriously degenerating year by year.
I mostly try to get myself to tai chi sessions, both in the water, and on
land-it seems to help.
I was too young to deny I had it, but I do wish for better hearing so I can
Thanks ed. These vids are great. Check out my similar menieres blog
Its okay man. I mean its not okay to be going deaf but you will cope. Be
strong. Youre not alone.
Thank you for your video. My dad is going through a terrible episode, and
we are scared. He’s had this for many, many years–since I was a child.
Thank God, he managed to control it and live a descent life. But years
later, which is now, he got one of the worse attacks. Your videos are great
and informative. It gives me relief that others are able to cope with this.
The best of luck to everyone.
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